Editors Note: The rollout of the NDIS during the first 3 years was meant to be a trial phase, to discover problems with the scheme design, the scheme implementation etc. The story below is surely a substantial problem. The disabled person has been left far worse off by joining the NDIS and just imagine how awful his life would be if his family couldn’t afford his medications.

The NDIS is meant to exist alongside the health system but the Government and the NDIA can’t simply pretend everything is fine, when it is clearly not. The health system has never supplied this person’s needs and this is why he was receiving special funding from a special State/Territory program which was not part of the standard health system. The fact that this program was rolled into the NDIS should help show that such support is intended to be provided by the NDIS and not the health system.

The rollout of the NDIS is meant to improve the life of the disabled but this story clearly indicates that the NDIS has made this person’s life worse. To put it into terms the NDIS might understand the person is now far less able to participate socially and economically because his whole family has less money. He has been made more dependent on charity and welfare and the NDIS is meant to reduce such welfare dependence.

Clearly this story shows that the NDIS is a complete failure in terms of this individual. It is crazy for the NDIS to just say that this is how the scheme was designed / how the legislation was written. The NDIA needs to get together with the Government and fix this situation. The NDIA is ignoring the reality that the health system won’t provide for this person, and frankly there is little point to this person being in the NDIS with such a poor outcome.

Come on NDIA, act like a leader in the disability sector and force the Government to sit down and sort out this mess. The NDIA is meant to be a separate agency, not just a Government instrumentality, so it should be able to lead the reform in this area.

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Police shooting victim left worse off after signing up to National Disability Insurance Scheme

It’s when Jonathan Crowley and his family believe life can’t get any tougher, that another obstacle appears.

A police bullet made the 48-year-old quadriplegic in 2001, and in 2012 he lost a legal bid for compensation worth $8 million.

Police shooting victim Jonathan Crowley is still waiting for the Asbestos Taskforce to move him out of his Mr Fluffy affected public housing apartment. Photo: Jamila Toderas

In 2014, Mr Crowley found out the unit he had been living in for more than a decade was caught up in the territory’s Mr Fluffy scandal.

And now, after signing up to the National Disability Insurance Scheme this year, Mr Crowley finds himself about $1000 a month worse off, with his parents forced to draw money from their mortgage to pay for his medications.

For years, the ACT government paid for medicines that helped him manage the pain and chronic infections that developed as a result of being bedridden.

But the NDIS does not pay for medications. And the ACT government has shifted responsibility for Mr Crowley’s support entirely to the scheme.


An NDIS spokeswoman said the scheme was designed to work side-by-side with other programs, and that the health system continued to have responsibility for people’s medicine once they entered the scheme.

“Where the NDIS does not fund a support someone previously received under another program, the National Disability Insurance Agency will seek to identify alternative supports or refer the person to other systems with a view to ensuring they…

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