The extended failures of the NDIS online system have hit more than 1000 Canberrans, adding stress, confusion and financial uncertainty to those with a disability.

Parents have seen their children’s names mysteriously drop off the disability scheme’s MyPlace web portal and lost records of previous claims as the Coalition government says the system’s key problems have been fixed, two months after the debacle began.

One of the biggest policy reforms in generations is about to change the lives of hundreds of thousands of Australians.

Some participants in the billion-dollar scheme have even been left out of pocket since the troubled national re-launch on July 1, with the hamstrung National Disability Insurance Agency indicating some refunds could not be given for months due to a new inflexibility of amending individuals’ plans.

The ACT Disability, Aged and Carer Advocacy Service chief executive Fiona May said a particular concern was the “enormous stress” participants were under, claiming the insurance agency had under-acknowledged the human impacts of the failures.

Melinda McFadden and her husband Grant are among more than 1000 Canberra parents who have had added stress due to extended failures of the NDIS online portal.

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“I have had conversations with people who have shared that they have lost sleep, been unable to undertake other activities, withdrawn from friends and family and had poor mental health as a result of

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